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Ellen speaks with Professor Rona Moss-Morris, Professor of Psychology at King’s College, London, about mental health, seeking support, and the effects of the coronavirus pandemic on people living with MS.
Ellen and Karen speak frankly about their experiences of fatigue while living with MS. As a health coach with her own personal experiences, Karen shares tips and tricks on dealing with fatigue, getting a good night’s sleep, and handling stigma from others.
Welcome to NeuroTransmissions, the podcast that aims to inform and inspire MS advocates. This series is for members of the MS community and broader neurology advocacy community, as well as anyone living with a neurological condition.
This series is hosted by Ellen Marshall, a person surviving and thriving while living with MS. Each episode will aim to deliver useful insights on a topic much anticipated by the community and articulated by an expert in their field. These frank discussions will aim to address the real questions the community are asking.
Ellen Marshall was diagnosed with RRMS in September 2015 at the age of 27 after 4 months of various MS symptoms. She has remained in remission since her diagnosis, but often experiences fatigue and some lingering symptoms. She is in full time employment, tries to exercise regularly and claims to have a diet that, sadly, only Elvis would be proud of!
Ellen has thrown herself into advocacy work within the MS community, has presented a TedTalk and spoken in interviews. She also has an Instagram account where she documents her life with MS.
Find out more about Ellen here:
Instagram: @manyscars_msTedTalkShift MS interview
As Ellen puts it herself, “I’ll take more from my MS that it will from me!”. We hope you can take as much from this podcast as possible.
In this episode Ellen speaks to Professor Rona Moss-Morris; Professor of Psychology as Applied to Medicine at King's College, London. Ellen and Rona talk Covid-19 and the effects it has had on their work lives, mental health, and working with people with MS. They candidly discuss the anxieties of the MS community during the pandemic, and what the lockdown can teach us about inclusivity and long-term health conditions. Ellen speaks about social media and utilising it as a platform for MS empowerment, as well as the dangers of its impacts on mental health.
Prof Rona Moss-Morris is the Head of Health Psychology and Chair in Psychology as Applied to Medicine at the Institute of Psychiatry, King's College, London. She has been working with people living with MS for a number of years. In 2013 she won MS Researcher of the Year as part of the Multiple Sclerosis Society awards, for a randomised controlled trial adjusting to MS, which compared Cognitive Behavioural Therapy, commonly known as CBT, to support listening to help people adjust to the early stages of multiple sclerosis.
In this episode Ellen speaks to Karen Moritz, Health coach and fellow person living with MS. They speak frankly about their own experiences with fatigue and the stigma they have faced from friends and in the workplace. They discuss how to explain MS fatigue to others who haven’t experienced it and often do not understand the strain it has on daily life. Karen offers hints and tips on how to manage fatigue and get a good night sleep and Ellen highlights the importance of understanding your own MS.
Karen Mortiz is a certified health coach who currently works full time for an Australian government agency, which has rolled out an innovative scheme across Australia to people living with a disability, including those living with MS. She used her own experience and her postgraduate qualification in nutrition to provide health coaching for a Patient Support Programme in Australia, while offering peer support to people living with MS in Australia in her spare time, too.
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