This year, the MS community will come together on May 31 to celebrate what “life with MS” means to them. Whether it’s embracing a new job in advocacy, aiming to run a thousand miles in a year, or becoming a grandfather, our Living Like You bloggers have proven time and time again that they live their lives with MS to the fullest. Because of that, we asked them a few questions about what that phrase represents for them in their daily lives. Here’s what they said:
What does the theme of “Life with MS” mean to you?
“Life with MS is a storybook with a new ending each day; it means that every new day is a new chance to be the best version of myself that I can be.” – Willeke
“It means that I keep going…even if it’s at a slower pace.” – Gaby
“It’s important to highlight that there is life after diagnosis. It may be different than what you first intended, but sometimes those changes can lead to even greater things.” – Claudia
“It means accepting and living with restrictions, but not surrendering to them.” – Declan
“To me, it means having as normal of a life as possible with MS. I don’t want to be sorted into the “patient” or “handicapped person” box. I want to live!” – Birgit
“Life with MS is about the little things that we must endure and triumph over every day.” – Jamie
“It means that although MS is with me every day, I still do whatever I want.” – Retha
What’s one piece of advice you would want to share with others about Life with MS?
“Stay as positive as your inner-self will allow.” – Declan
“Try to find a way to live your life as normally as possible with your MS – stay satisfied and happy, and organize your life to have enough rest and time for yourself… Life is too beautiful to let pass by.” – Birgit
“Carry on with your plans, if needed, change them, but don’t abandon them.” – Retha
“Remember that YOU are unique and therefore will have a unique experience.” – Angela
“Find a good neurologist you trust and always remember that you are not alone.” – Alexandra
Fill in the blank: Life with MS is ________
“Life with MS is challenging in so many ways!” – Claudia
“Life with MS is eye-opening!” – Jamie
“Life with MS is never dull!” – Retha
“Life with MS is unpredictable. It taught me how to tolerate unplanned changes!” – Gaby
“Life with MS is a challenge that I’m determined to meet head-on.” – Alexandra
What’s one misconception you think others have about what your Life with MS is like?
“Everyone with MS ends up in a wheelchair.” – Declan
“The biggest misconception is that if people see me on a good day, I am healed. They have no idea that my MS changes from minute to minute, and that’s how it works. It doesn’t mean I’m not sick.” – Jamie
“Most people believe or think that in order to be sick or unwell, one must look sick or unwell. The opposite is true for me – I try my best not to look sick even on my worst days.” – Retha
“Although MS will not shorten my life, it will alter my life. I can still be a great mom and live a fulfilled life even though I have an autoimmune disease. I am living a full life with the abilities I have.” – Gaby
If you had to describe your life with MS in three words – what would they be?
“Life goes on.” – Willeke
“Redirected, frustrating, supported” – Claudia
“Restricted but liveable.” – Declan
“Up and down.” – Jamie
“Advocating for ME” – Angela
So what does “life with MS” really mean? If our bloggers have taught our community anything, it’s that life with MS can be challenging and at times, a little out of control, but can also be fulfilling, positive, and wonderful. We hope you have a wonderful World MS Day 2017!