World MS Day: What Does “Life with MS” Mean to You?

This year, the MS community will come together on May 31 to celebrate what “life with MS” means to them. Whether it’s embracing a new job in advocacy, aiming to run a thousand miles in a year, or becoming a grandfather, our Living Like You bloggers have proven time and time again that they live their lives with MS to the fullest. Because of that, we asked them a few questions about what that phrase represents for them in their daily lives. Here’s what they said:

What does the theme of “Life with MS” mean to you?

“Life with MS is a storybook with a new ending each day; it means that every new day is a new chance to be the best version of myself that I can be.” – Willeke

“It means that I keep going…even if it’s at a slower pace.” – Gaby

“It’s important to highlight that there is life after diagnosis. It may be different than what you first intended, but sometimes those changes can lead to even greater things.” – Claudia

“It means accepting and living with restrictions, but not surrendering to them.” – Declan

“To me, it means having as normal of a life as possible with MS. I don’t want to be sorted into the “patient” or “handicapped person” box. I want to live!” – Birgit

“Life with MS is about the little things that we must endure and triumph over every day.” – Jamie

“It means that although MS is with me every day, I still do whatever I want.” – Retha

What’s one piece of advice you would want to share with others about Life with MS?

“Stay as positive as your inner-self will allow.” – Declan

“Try to find a way to live your life as normally as possible with your MS – stay satisfied and happy, and organize your life to have enough rest and time for yourself… Life is too beautiful to let pass by.” – Birgit

“Carry on with your plans, if needed, change them, but don’t abandon them.” – Retha

“Remember that YOU are unique and therefore will have a unique experience.” – Angela

“Find a good neurologist you trust and always remember that you are not alone.” – Alexandra

Fill in the blank: Life with MS is ________

“Life with MS is challenging in so many ways!” – Claudia

“Life with MS is eye-opening!” – Jamie

“Life with MS is never dull!” – Retha

“Life with MS is unpredictable. It taught me how to tolerate unplanned changes!” – Gaby

“Life with MS is a challenge that I’m determined to meet head-on.” – Alexandra

What’s one misconception you think others have about what your Life with MS is like?

“Everyone with MS ends up in a wheelchair.” – Declan

“The biggest misconception is that if people see me on a good day, I am healed. They have no idea that my MS changes from minute to minute, and that’s how it works. It doesn’t mean I’m not sick.” – Jamie

“Most people believe or think that in order to be sick or unwell, one must look sick or unwell. The opposite is true for me – I try my best not to look sick even on my worst days.” – Retha

“Although MS will not shorten my life, it will alter my life. I can still be a great mom and live a fulfilled life even though I have an autoimmune disease. I am living a full life with the abilities I have.” – Gaby

If you had to describe your life with MS in three words – what would they be?

“Life goes on.” – Willeke

“Redirected, frustrating, supported” – Claudia

“Restricted but liveable.” – Declan

“Up and down.” – Jamie

“Advocating for ME” – Angela

So what does “life with MS” really mean? If our bloggers have taught our community anything, it’s that life with MS can be challenging and at times, a little out of control, but can also be fulfilling, positive, and wonderful. We hope you have a wonderful World MS Day 2017!

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