LLY blogger Jamie shares her experience of lassitude fatigue and her advice on how to deal with tiredness when living with MS.read more
“Sleep is that golden chain that ties health and our bodies together.” (Thomas Dekker)
Bathroom trip 1. Exactly 9 steps between my bed and my ensuite bathroom. The Body Scan meditation on Spotify awaits on my return to bed. I’m so tired that I fall asleep with the mobile on my chest.
Bathroom trip 2. Exactly 15 steps. Waterworks are on strike. This equates to singing at least two songs while staring at the ceiling. Cold feet, cold knees. Shuffling back to bed. Seems my sleep patterns are on strike, also.
It’s sinful wasting so many sleepless hours on what should be a rejuvenating process. The cycle is endless: waking up from facial pain because I slept on my left side, followed by not being able to fall asleep because of the pain. I feel like I need a rubber hammer to knock me out cold for a few hours.
Bathroom trip 3 and 4. Still awake. So tired that even my thoughts have turned gibberish.
Now I’m annoyed. Being woken up by the house alarm next door is like an elephant stepping through the cutest little flowers in your backyard. But, it doesn’t matter now, time for a breakfast of medications and strong hot coffee.
I’m sure sleep will find me sometime during the day.
The National Sleep Foundation states that 2 out of 3 people with chronic pain have difficulties sleeping. Because pain is a sensory problem that occurs when nerves are being sharply stimulated, it activates the brain, and therefore keeping you awake.
Like so many others with MS, fatigue has a big impact on my life. Not only do I have daytime moments where my energy levels seem to literally drain through my feet into the ground, but sometimes it slowly gets worse before even talking becomes something I can’t do anymore.
To add insult to injury, for the last 14 years, continually interrupted sleep patterns during the night caused by chronic pain sets the tone for the day to come, and in the following night. When asked if I can remember the last night I slept well, I say, “Sorry, I can’t remember what a good night’s sleep feels like.”
It’s vital to try and improve your sleep hygiene if you want to lead a happier, more productive, focused life. It also makes you feel less hungry and ward off infections.
Sleep.org, by the National Sleep Foundation
Body scan meditation, by Stanford University