No one who has been diagnosed with multiple sclerosis ever expects life to be perfect. Some days we are getting on just fine in life, and boom a relapse hits out of nowhere. While this can really shake us to our core, the reality is we have to pick ourselves up and keep going. While I agree there are great support groups out there and family and friends can be extremely helpful, at the end of the day it is just you. If you are always waiting around for someone else to be your cheerleader unfortunately you could be in for quite a long wait.
I am sure people hope for the best for you and give their well wishes and obviously will wish that your MS stays stable, but more often than not they can’t be there to walk beside you through the tough times. The truth is they have their own lives too. Between kids, work, and paying bills – it can be tough to check in all the time. I used to get extremely annoyed with people who didn’t make much effort to stay in contact, but nowadays I just get on with life. Dwelling on it is only a waste of time. At the end of the day, the only one who can get you out of bed in the morning is you.
While most people are an extremely positive force in your life there are a few negative ones out there also. There are eventhose who use you until they feel you are no more benefit to them, but the good news is that more often than not, when they walk away they are of no loss to you anyway.
In the years since my diagnosis, MS has changed me so much but definitely in a good way. I used to wear my heart on my sleeve but one thing MS gave me (not by choice) was the ability to toughen up. When you’re fighting MS, you need to put all your energy into keeping well so why get dragged down by worrying about people who are probably not worrying about you. They are concentrating on living. I have no doubt you cross their mind from time to time. Maybe on their way to work or when they have ten minutes of peace at night when the kids are gone to bed or they finished the 33rd load of laundry they are doing because the week got away from them. But at the end of the day, you have to be your own cheerleader, be 100% team you, and kick some MS ass. You got this! However I don’t recommend you walk around with pom-poms or anything like that. I tried that once. I got some strange looks in the supermarket!